Katy has been suffering from a great deal of pain for a long time. At one time, she was diagnosed with gall bladder problems, but the medical profession either thought that was a false symptom (due to the many GI problems that come with her disease), or that surgery was unwise at the time due other complications. A week ago, her pain was so intense, they took her to the Roanoke hospital where she underwent tests all night. Everything came out normal, except that one of the CT scans showed a slight thickening of the gall bladder wall. They discussed the matter with a couple of doctors who were familiar with Katy's case, and they decided that her gall bladder should come out. Because of her blood problems, the hematologist did not recommend surgery at this time. But, although they knew there were risks, they scheduled the surgery for (last) Saturday morning. Katy was given platelet transfusions in advance of the surgery; the surgery went smoothly, Katy returned home on Sunday, and is doing GREAT! She is also pain-free.
Addendum: Katy is in pain again - her entire body. They believe it to be some kind of reaction to the platelets she received.
Addendum 2: Katy's current pain seems to be due to the tapering off of the prednisone she has been on for several months. Two other sufferers of HPS have added credibility to this diagnosis, as they have suffered from the same type of pain for the same reason.
(Originally posted March 5, 2007)
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