Katy is my great niece.  She was born in India in September of 1984, and was adopted by my nephew Paul and his wife Dawn when she was 4 years old.  This summer, she became violently ill and was subsequently diagnosed with Hermansky-Pudlak syndrome.  She had been improving drastically for a while, but when taken off a very strong medication for pain, she soon started deteriorating again.  A couple of days ago she returned to the hospital.  She is an amazing young lady;  I have never met her myself, but I feel I have come to know her through reading the blog her uncle set up to track her progress.  Click on the link and meet Katy and her family!
http://www.katysblog.com (site name has been changed)
(Originally posted October 12, 2006)
Blogger's note - since this was originally published, a new blog has been created, and the posts are being gradually moved to http://www.campbellfamilyjournal.com.  The section called Katy's Musings is being/has been transferred to http://www.kathrynskeepsakes.com.
Friday, January 25, 2008
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